May 12th is Fibromyalgia Awareness Day. We who suffer from this disease wear purple, post memes to Facebook and write posts about how it feels to have it.
Which I do anyways on a regular basis.
We also have a butterfly as our spokesperson.
You all know the drill, if you’ve been with me here for any length of time.
Instead of writing about my personal experiences today, I will share this important information that I have found here.
- Pain – Fibromyalgia pain is profound, chronic, widespread and debilitating. It can present throughout the body in varying levels of intensity. FM can cause stabbing and shooting pain and deep muscular aching, throbbing and twitching. Neurological problems such as numbness, tingling and burning are often present. The severity of the pain and stiffness is often worse in the morning. Aggravating factors include cold or humid weather, non-restorative sleep, physical and mental fatigue, excessive physical activity, physical inactivity, anxiety and stress.
- Fatigue – The fatigue that presents with FM is often a profound, overwhelming exhaustion that can interfere with work, personal, social or educational activities.
- Impaired cognition – “Fibro fog”: difficulty reasoning, confusion, impaired concentration and impaired memory.
- Sleep problems – Many fibromyalgia patients have sleep disorders that affect Stage 4 sleep, which is important in getting a deep, restorative sleep. Sleep studies of people with fibromyalgia show bursts of brain activity that limit or even eliminate the time they are able to spend in deep sleep.
- Other symptoms/co-morbidities – Irritable bowel and bladder, headaches and migraines, restless legs syndrome, skin sensitivities and rashes, dry eyes and mouth, anxiety, major depressive disorder, ringing in the ears, dizziness, vision problems, Raynaud’s Syndrome, neurological symptoms and impaired coordination.
So, in a nutshell, the above describes perfectly what it is like to live with fibromyalgia.
If you know someone who has fibro, give them a gentle hug today and tell them that you love them.
If you have fibro, give yourself a gentle hug and do something nice for yourself. I plan on lighting a scented candle, telling the rain outside to screw off, taking a hefty dose of pain meds and eating a bowl of ice cream for lunch.